Treatment will depend on your child’s symptoms, age, and general health. It will also depend on how severe the condition is.
There is no cure for Marfan syndrome. Treatment is based on which organs are affected. Your child will be closely watched for problems by getting regular checkups, echocardiography, and complete eye exams.
Heart problems are treated by a pediatric cardiologist. This is a doctor with special training to treat heart problems in children. The treatment may include:
- Heart medicine. This includes beta-blockers. These medicines ease the work of the heart. As your child grows, he or she will probably need higher doses of the medicine.
- Surgery. This is to repair the aorta. It may be planned or it may be an emergency surgery. A child may also have surgery to repair heart valves. And some children may need a heart transplant.
Bone and joint problems are treated by a doctor with special training (orthopedist or orthopedic surgeon). Treatment may include braces, therapy, or surgery.
Eye problems are treated by an eye specialist (ophthalmologist). Treatment may include medicine or surgery.