After the surgical repair and time for recovery in the hospital, your baby will be able to go home. Your doctor may recommend pain medicines such as acetaminophen or ibuprofen to keep your baby comfortable. Your child's heart care team will talk about pain control before your child goes home.
The nursing staff will show you how to give any special treatments at home, if needed. Or you may need a home health agency to help. Your child will likely need special formula and supplemental feedings to get enough nutrition.
You may get other instructions from your child's pediatric cardiologist and the hospital staff.
The outlook varies from child to child. Be sure to get regular follow-up care at a center offering pediatric congenital heart care. Your child likely will need more surgery.
After each surgery, your pediatric cardiologist will follow your baby’s recovery. He or she will make changes to medicines, help you with feeding problems, measure oxygen levels, and determine when and if it is time for the next surgery.
Your child may need to be on long-term antibiotics, or take antibiotics before dental or other procedures. Your healthcare provider can tell you if this is needed.
It is important that your child get all recommended vaccines. Talk with your healthcare provider about this.
During your child's life, pregnancy and non-heart surgeries may be very risky.
They require careful evaluation and discussion with a cardiologist.
Your child will need regular follow-up care at a center offering pediatric or adult congenital heart care for the rest of his or her life.